학회지보기

치매노인 배우자의 적응경험에 관한 근거이론적 접근

A Grounded Theory Approach to the Adjustment Experiences in Spouses of Elderly People with Dementia

손정아 (아주대학교 대학원), 박은영 (충남대학교 간호대학), 현명선 (아주대학교 간호대학 - 간호과학연구소)

언어 :

권호 : v.25, no.2, 184-196,

발행일자 : 2018년 8월

PDF 원문보기

초록

Purpose: This study explored the adjustment experiences of spouses of elderly people with dementia in Korea. Methods: A grounded theory method was used. The data were collected by individual in-depth interviews with 11 spouses of elderly people with dementia. Results: In the analysis, 17 categories were derived. A core category emerged: Adjusting to daily life of providing love-based care. Eight major strategies for dealing with the psychosocial problems faced by spouses of elderly people with dementia: Feeling one's own responsibility in caring; halting personal activities; adopting a spouse-oriented daily lifestyle; caring with love; efforts for maintaining one's own health; efforts for maintaining spouse's health; depending on religious belief; and trying to have time for oneself. The consequences that resulted from applying these strategies were identified as "feeling worthwhile for caring," "maintaining a peaceful life," and "being grateful of the present." Conclusions: This study presents a holistic view of the adjustment experiences of spouses of elderly people with dementia. This study can also provide directions for developing interventions for enhancing the quality of life of spouses of elderly people with dementia.

참고문헌 (30)

  • Statistics Korea. Population Projections for Korea 2017 [Internet]. Daejeon: Statistics Korea; 2017 [cited 2018 August 6]. Available from: http://kosis.kr/statHtml/statHtml.do?orgId=101&tblId=DT_1BPB002&vw_cd=MT_ZTITLE&list_id=A41_30&seqNo=&lang_mode=ko&language=kor&obj_var_id=&itm_id=&conn_path=MT_ZTITLE

  • Nam HJ, Hwang SH, Kim, YJ, Byun SJ, Kim KY. Korean Dementia Observatory 2017. National Institute of Dementia Report. Seongnam: National Institute of Dementia, 2017 December. NIDR-1704-0019.

  • Sato S, Kazui H, Shimizu Y, Yoshida T, Yoshiyama K, Kanemoto H, et al. Usefulness of carer-held records to support informal caregivers of patients with dementia who live at home. Psychogeriatrics. 2018;18(3):166-174. https://doi.org/10.1111/psyg.12304

    http://dx.doi.org/10.1111/psyg.12304

  • Cerejeira J, Lagarto L, Mukaetova-Ladinska EB. Behavioral and Psychological Symptoms of Dementia. Frontiers in Neurology. 2012;3:73. https://doi.org/10.3389/fneur.2012.00073

  • Huang SS, Lee MC, Liao YC, Wang WF, Lai TJ. Caregiver burden associated with behavioral and psychological symptoms of dementia (BPSD) in Taiwanese elderly. Archives of Gerontology and Geriatrics. 2012;55(1):55-59. https://doi.org/10.1016/j.archger.2011.04.009

    http://dx.doi.org/10.1016/j.archger.2011.04.009

  • Nam HJ, Hwang SH, Kim, YJ, Byun SJ, Kim KY. Korean Dementia Observatory 2017. National Institute of Dementia Report. Seongnam: National Institute of Dementia, 2017 December. NIDR-1704-0019.

  • Lee DW. What is needed for the success of national responsibility for dementia. Journal of the Korean Medical Association. 2017;60(8):618-621. https://doi.org/10.5124/jkma.2017.60.8.618

    http://dx.doi.org/10.5124/jkma.2017.60.8.618

  • Park M, Park MH, Kim HH. Effects of a multimodal psychoeducational program on burden, depression, and problem coping behaviors in family caregivers of patients with dementia. Journal of Korean Gerontological Nursing. 2015;17(1):10-19. https://doi.org/10.17079/jkgn.2015.17.1.10

    http://dx.doi.org/10.17079/jkgn.2015.17.1.10

  • Jang HY, Yi M. Hermeneutic phenomenological study on caring experience of spouses of elderly people with dementia at home. Journal of Korean Academy Nursing. 2017;47(3):367-379. https://doi.org/10.4040/jkan.2017.47.3.367

    http://dx.doi.org/10.4040/jkan.2017.47.3.367

  • Cho E, Cho E, Kim SS. Effects of family relationship on burden of family caregivers of older adult with dementia. Journal of the Korean Gerontological Society. 2010;30(2):421-437.

  • Cho H, Ko Z. Current state of senile dementia and improvement of the long term care insurance for elderly people. Journal of the Korea Academia-Industrial Cooperation Society. 2012;13(12):5816-5825. https://doi.org/10.5762/KAIS.2012.13.12.5816

    http://dx.doi.org/10.5762/KAIS.2012.13.12.5816

  • Yoon B, Shim YS, Kim YD, Lee KO, Na SJ, Hong YJ, et al. Who takes care of patients with dementia in Korea: A study on the present state of patients with dementia living alone and primary caregivers. Dementia and Neurocognitive Disorders 2012;11:13-17.

    http://dx.doi.org/10.12779/dnd.2012.11.1.13

  • Choi HK. A ground theory study on elderly male caregivers of spouses: Focused on the structure and types of care. Family and Culture. 2012;24(4):45-81.

    http://dx.doi.org/10.21478/family.24.4.201212.002

  • Gibbons C, Creese J, Tran M, Brazil K, Chambers L, Weaver B, et al. The psychological and health consequences of caring for a spouse with dementia: A critical comparison of husbands and wives. Journal of Women and Aging. 2014;26(1):3-21. https://doi.org/10.1080/08952841.2014.854571

    http://dx.doi.org/10.1080/08952841.2014.854571

  • Hong SC, Coogle CL. Spousal caregiving for partners with dementia: A deductive literature review testing Calasanti's gendered view of care work. Journal of Applied Gerontology. 2016;35(7):759-787. https://doi.org/10.1177/0733464814542246

    http://dx.doi.org/10.1177/0733464814542246

  • Kim CM. The coping process of family caregivers for demented elderly. Journal of Korean Academy of Community Health Nursing. 2005;16(3):249-259.

  • Sung MR, Yi M, Lee DY, Jang HY. Overcoming experiences of family members caring for elderly patients with dementia at home. Journal of Korean Academy Nursing. 2013;43(3):389-398. https://doi.org/10.4040/jkan.2013.43.3.389

    http://dx.doi.org/10.4040/jkan.2013.43.3.389

  • Kim GM, Park E, Lee YS, Lee JN. Resilience of families with elderly patients with dementia. Journal of Korean Academy of Psychiatric and Mental Health Nursing 2012;21(3):197-209.

    http://dx.doi.org/10.12934/jkpmhn.2012.21.3.197

  • Strauss A, Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory. 4th ed. Thousand Oaks, CA:Sage; 1998. p. 1-142.

  • Lincoln, YS, Guba, EG. Naturalistic Inquiry. Newbury Park, CA: Sage; 1985. p. 289-331.

  • Ducharme FC, Levesque LL, Lachance LM, Kergoat MJ, Legault AJ, Beaudet LM, et al. "Learning to become a family caregiver" efficacy of an intervention program for caregivers following diagnosis of dementia in a relative. The Gerontologist. 2011;51(4):484-494. https://doi.org/10.1093/geront/gnr014

    http://dx.doi.org/10.1093/geront/gnr014

  • Robinson L, Clare L, Evans K. Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couple. Aging & Mental Health. 2005;9:484-494. https://doi.org/10.1080/1360780500114555

  • Vatter S, Kathryn R. McDonald KR, Stanmore E, Clare L, McCormick SA, Lerola I. Qualitative study of female caregiving spouses' experiences of intimate relationships as cognition declines in Parkinson's disease. Age and Ageing. 2018;47:604-610. https://doi.org/10.1093/ageing/afy049

    http://dx.doi.org/10.1093/ageing/afy049

  • Cheon SH. The relationship among perceived entrapment, depression and subjective well-being of women as family caregivers caring for dementia elderly. Korean Journal of Women Health Nursing. 2011;17(3):285-293. https://doi.org/10.4069/kjwhn.2011.17.3.285

    http://dx.doi.org/10.4069/kjwhn.2011.17.3.285

  • Thommessen B, Aarsland D, Braekhus A, Oksengaard A, Engedal K, Laake K. The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease. International Journal of Geriatric Psychiatry. 2002;17:78-84 https://doi.org/10.1002/gps.524

    http://dx.doi.org/10.1002/gps.524

  • Yeh PM, Bull M. Use of the resiliency model of family stress, adjustment and adaptation in the analysis of family caregiver reaction among families of older people with congestive heart failure. 2011;7:117-126. https://doi.org/10.1111/j.1748-3743.2011.00275.x

    http://dx.doi.org/10.1111/j.1748-3743.2011.00275.x

  • Chen EM, Huang MF, Yeh YC, Huang WH and Chen CS. Effectiveness of coping strategies intervention on caregiver burden among caregivers of elderly patients with dementia. Japanese Psychogeriatric Society. 2015;15:20-25. https://doi.org/10.1111/psyg.12071

    http://dx.doi.org/10.1111/psyg.12071

  • Abdollahpour I, Nedjat S, Salimi Y. Positive aspects of caregiving and caregiver burden: A study of caregivers of patients with dementia. Journal of Geriatric Psychiatry and Neurology. 2018;31(1):34-38. https://doi.org/10.1177/0891988717743590

    http://dx.doi.org/10.1177/0891988717743590

  • Gellert P, HaÈusler A, Suhr R, Gholami M, Rapp M, Kuhlmey A, Nordheim J. Testing the stress-buffering hypothesis of social support in couples coping with earlystage dementia. PLoS ONE. 2018;13(1):1-14. https://doi.org/10.1371/journal.pone.0189849

  • Lin I, Fee HR, Wu HA. Negative and positive caregiving experiences: A closer look at the intersection of gender and relationships. Family Relation. 2011;61(2):343-358. https://doi.org/10.1111/j.1741-3729.2011.00692.x

    http://dx.doi.org/10.1111/j.1741-3729.2011.00692.x